HELP SEEKING EXPERIENCES OF ASIAN AMERICAN CAREGIVERS OF CHILDREN WITH AUTISM: A QUALITATIVE STUDY

This dissertation is a two-study dissertation divided into two chapters focused broadly on the help-seeking experiences of racial-ethnic minority caregivers of children with autism spectrum disorder (ASD). In chapter one, a systematic literature review was conducted to identify articles that have studied barriers in help-seeking for racial-ethnic minority caregivers of children with autism. A broad literature search across four databases was conducted (i.e., PubMed, PsycINFO, Education Resources Information Center, and Child Development and Adolescent Studies). The coding team identified 17 articles on help-seeking barriers for racial-ethnic minority caregivers of children with autism. A thematic analysis was then used to synthesize the help-seeking barriers identified across these 17 studies. Four themes emerged from our findings: logistical barriers, provider competence, ASD literacy, and cultural stigma. We also provided clinical recommendations for healthcare providers working with families with racial-ethnic minority caregivers of children with autism.

The second chapter was informed by the results found in chapter one. In chapter one, we found little research on Asian American caregiver perspectives on help-seeking barriers to autism services. Using caregiver perspectives, this research study sought to understand the help-seeking experiences of Asian American families. In this study, we conducted semi-structured qualitative interviews with 10 Asian American caregivers with a child aged 3-17 diagnosed with ASD. Interviews were conducted virtually, audio recorded, transcribed, and coded by three researchers. Data was analyzed using thematic analysis (Braun & Clarke, 2006). Our results indicated four themes in perceived barriers by Asian American caregivers of children with autism interviewees. Themes included: (1) logistical barriers, (2) provider level barriers competence, (3) ASD literacy, and (4) cultural stigma. We deliver clinical recommendations for providers to address the four barriers found in our study when working with Asian American families of children with ASD.